I have survived toughest year. Still in danger, but still alive.
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29-12-2015, 05:32 AM
RE: I have survived toughest year. Still in danger, but still alive.
Glad things are a bit better now. I can totally understand the shock thing, I was like it for a whole week as was the Christian community in our village but it does pass with time I still get what I describe as shock flashbacks especially walking the dog past the church and graveyard you may experience this for a while I guess it depends how well you knew this person. Don't forget we are here for you and concentrate on staying as well as you can for that lovely niece of yours.
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29-12-2015, 05:37 AM
RE: I have survived toughest year. Still in danger, but still alive.
(29-12-2015 05:32 AM)adey67 Wrote:  Glad things are a bit better now. I can totally understand the shock thing, I was like it for a whole week as was the Christian community in our village but it does pass with time I still get what I describe as shock flashbacks especially walking the dog past the church and graveyard you may experience this for a while I guess it depends how well you knew this person. Don't forget we are here for you and concentrate on staying as well as you can for that lovely niece of yours.


Thanks mate. I will be fine. As I said it was the shock of losing a friend. I have lost many now. I will be okay. Smile

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
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05-01-2016, 03:32 AM
RE: I have survived toughest year. Still in danger, but still alive.
Having spoken to a member off site, it was thought I should let you know what has been happening. It may or not have been noticed I had been losing patience,. A post to Eliza, who I like very much, showed so.

As has been mentioned there is a cycle lasting around 10 days that follows my regular chemo' doses. The cycles are unpredictable and vary in intensity. These are all a side effect of this trial. They are to be expected. The problem for me at least, is nobody, including my doctors, knows what to expect.

The cycle has also been extending and the pain intensifying. For example the last lumbar puncture feels fresh. This is something I can handle, now having had 30+. However it is a concern. It normally takes about two days.

The drug also effects the mind and has the ability to literally make on insane. This also became apparent over days 9 through 12. Speech slurred, unable to think coherently etc. Not being observed by others, this can sneak up on one without one realising it.

I returned from hospital today but must present myself tomorrow. Then later this week on Friday. Perhaps on the weekend. am unsure at this point.

On the + side, the drug appears to be working wonders. My overall response to it had been stunning. My doctor described my response as being one of the best he has witnessed. The drug originally was developed in a country that has a socialist style health system. Much like Australia. That, for it's small population has a very healthy cancer research program. Indeed, some of the doctors who became my friends over time are now working in the research field. Less money, but more job satisfaction, Smile

So that is what had been taking lace at this end.

Many thanks. D.

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
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05-01-2016, 04:35 AM
RE: I have survived toughest year. Still in danger, but still alive.
Banjo, you're amazing Smile Keep fighting! Love - MDog Smile

We'll love you just the way you are
If you're perfect -- Alanis Morissette
(06-02-2014 03:47 PM)Momsurroundedbyboys Wrote:  And I'm giving myself a conclusion again from all the facepalming.
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05-01-2016, 05:34 AM
RE: I have survived toughest year. Still in danger, but still alive.
Glad to hear you're doing okay.

If you need transport Wed through Friday, just let me know.

Be well.
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05-01-2016, 06:09 AM
RE: I have survived toughest year. Still in danger, but still alive.
I'm so happy to hear the drug is working wonders. I'm sorry you have to deal with some of those side effects though Hug
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05-01-2016, 06:18 AM
RE: I have survived toughest year. Still in danger, but still alive.
(05-01-2016 03:32 AM)Banjo Wrote:  On the + side, the drug appears to be working wonders. My overall response to it had been stunning.

Thumbsup

Don't worry, we understand and can ignore the mood swings and the occasional rambling. Just keep fighting.

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05-01-2016, 07:24 AM
RE: I have survived toughest year. Still in danger, but still alive.
The drug makes you crazy, Banjo? How can anyone tell? Wink

"Theology made no provision for evolution. The biblical authors had missed the most important revelation of all! Could it be that they were not really privy to the thoughts of God?" - E. O. Wilson
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05-01-2016, 05:42 PM
RE: I have survived toughest year. Still in danger, but still alive.
Thanks guys. I must present to hospital today. Running late waiting for a carer, then I can leave.

Horrible day here too. loads of rain. Then one day off and back again Friday. Two days off and back again Monday.....

Thanks for your patience. Smile

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
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05-01-2016, 05:58 PM
RE: I have survived toughest year. Still in danger, but still alive.
(05-01-2016 03:32 AM)Banjo Wrote:  Having spoken to a member off site, it was thought I should let you know what has been happening. It may or not have been noticed I had been losing patience,. A post to Eliza, who I like very much, showed so.

As has been mentioned there is a cycle lasting around 10 days that follows my regular chemo' doses. The cycles are unpredictable and vary in intensity. These are all a side effect of this trial. They are to be expected. The problem for me at least, is nobody, including my doctors, knows what to expect.

The cycle has also been extending and the pain intensifying. For example the last lumbar puncture feels fresh. This is something I can handle, now having had 30+. However it is a concern. It normally takes about two days.

The drug also effects the mind and has the ability to literally make on insane. This also became apparent over days 9 through 12. Speech slurred, unable to think coherently etc. Not being observed by others, this can sneak up on one without one realising it.

I returned from hospital today but must present myself tomorrow. Then later this week on Friday. Perhaps on the weekend. am unsure at this point.

On the + side, the drug appears to be working wonders. My overall response to it had been stunning. My doctor described my response as being one of the best he has witnessed. The drug originally was developed in a country that has a socialist style health system. Much like Australia. That, for it's small population has a very healthy cancer research program. Indeed, some of the doctors who became my friends over time are now working in the research field. Less money, but more job satisfaction, Smile

So that is what had been taking lace at this end.

Many thanks. D.

Iz okay! Shy Don't bother me, none! Heart

Let me know when you're being impatient with me, so I know when to tell ya to go kiss a kangaroo's ass! Drinking Beverage

Laugh out load Tongue Hug

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