I have survived toughest year. Still in danger, but still alive.
Post Reply
 
Thread Rating:
  • 2 Votes - 5 Average
  • 1
  • 2
  • 3
  • 4
  • 5
28-01-2016, 07:06 AM
RE: I have survived toughest year. Still in danger, but still alive.
You have helped many yourself by your example of courage Smile Everyone who suffers from cancer has this lonely battle, we have been privileged to see you fight it.

We'll love you just the way you are
If you're perfect -- Alanis Morissette
(06-02-2014 03:47 PM)Momsurroundedbyboys Wrote:  And I'm giving myself a conclusion again from all the facepalming.
Find all posts by this user
Like Post Quote this message in a reply
[+] 6 users Like morondog's post
28-01-2016, 07:52 AM
RE: I have survived toughest year. Still in danger, but still alive.
(28-01-2016 07:06 AM)morondog Wrote:  You have helped many yourself by your example of courage Smile Everyone who suffers from cancer has this lonely battle, we have been privileged to see you fight it.

What else is one to do? I saw many theists give up and fall into the arms of their imaginary gods. They are dead. Expecting another life I suppose. I know this is all I have.

So I thought of my students and family and turned to you for help. It was freely given. Something for which I am eternally grateful.

You, Thumpa and many others have the knowledge that you helped save my life. I will never forget it.

With the most sincere gratitude. Dale.

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
Find all posts by this user
Like Post Quote this message in a reply
[+] 7 users Like Banjo's post
28-01-2016, 12:01 PM
RE: I have survived toughest year. Still in danger, but still alive.
I was determined to not come to the forum this week at all but then, I saw THIS and got to thinking - Dale needs this!!

But now, I see those photos and WOW! - you are looking SO healthy, my friend! Hug Whatever you and the docs are doing, something is doing you good! Thumbsup

***
Still... Consider I am curious ... it appears they've done trials for the past year or so with this new drug, Ventetoclax. Dale, do you get to discuss much with your doctors about newer drugs or are you able to switch to other drugs? Are you obliged to stay the course or is there some flexibility with these trial treatments?

Since it is so promising, I'm sure your health providers will at least be able to discuss it, if asked. Shy

A new type of thinking is essential if mankind is to survive and move to higher levels. ~ Albert Einstein
Find all posts by this user
Like Post Quote this message in a reply
[+] 5 users Like kim's post
28-01-2016, 04:59 PM
RE: I have survived toughest year. Still in danger, but still alive.
(28-01-2016 12:01 PM)kim Wrote:  I was determined to not come to the forum this week at all but then, I saw THIS and got to thinking - Dale needs this!!

But now, I see those photos and WOW! - you are looking SO healthy, my friend! Hug Whatever you and the docs are doing, something is doing you good! Thumbsup

***
Still... Consider I am curious ... it appears they've done trials for the past year or so with this new drug, Ventetoclax. Dale, do you get to discuss much with your doctors about newer drugs or are you able to switch to other drugs? Are you obliged to stay the course or is there some flexibility with these trial treatments?

Since it is so promising, I'm sure your health providers will at least be able to discuss it, if asked. Shy


Hi Kim.
I am on just the one trial drug. I am unable to switch as it is hard to get onto any trial really and this appears promising. Each cycle costs about $100,000.00 AUD. Each cycle lasts about four weeks.

I visit the hospital and speak with my doctors and co ordinators twice per week. Next week will be four times. The drug is removed on monday. Tuesday lumbar puncture. Wednesday off. Thursday bone marrow biopsies. Friday see the specialist.

Only one visit the following monday then the rest of the week off. Then a reconnect the following Monday. After that cycle I get 8 weeks off. Then back on the chemo. During the lumbar puncture they will take marrow and inject a certain amount of chemo. This has strong effects on me that can last up to twelve days. These effects are mainly emotional and once made me present myself to the emergency ward as suicidal.

This process with continue until February 2017.

During my time, 9 months, in the first hospital I received chemo every two days. This was ultra strong chemo and it ended up destroying various nerves. For example, parts of my feet are numb. The nerve doctor said "Chemo has really done a number on you!"

Eventually that treatment had to be stopped because it was killing me. I came very close to death 3 times.

I then went into remission but it lasted only 4 weeks. It was decided then that this trial was my only option. And it seems to be working. I then spent one more month in hospital as they adjusted the dosage. The danger is in removing the drug. Will the remission cease as it did before? Only time will tell. Smile

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
Find all posts by this user
Like Post Quote this message in a reply
[+] 1 user Likes Banjo's post
28-01-2016, 06:00 PM (This post was last modified: 28-01-2016 06:05 PM by Chas.)
RE: I have survived toughest year. Still in danger, but still alive.
(28-01-2016 07:52 AM)Banjo Wrote:  
(28-01-2016 07:06 AM)morondog Wrote:  You have helped many yourself by your example of courage Smile Everyone who suffers from cancer has this lonely battle, we have been privileged to see you fight it.

What else is one to do? I saw many theists give up and fall into the arms of their imaginary gods. They are dead. Expecting another life I suppose. I know this is all I have.

So I thought of my students and family and turned to you for help. It was freely given. Something for which I am eternally grateful.

You, Thumpa and many others have the knowledge that you helped save my life. I will never forget it.

With the most sincere gratitude. Dale.

That's 'cuz we're fuckin' awesome. Big Grin (Well, as awesome as soulless, baby eatin', sex-crazed, devil worshipers can be.)

But you know that. Yes

Skepticism is not a position; it is an approach to claims.
Science is not a subject, but a method.
[Image: flagstiny%206.gif]
Visit this user's website Find all posts by this user
Like Post Quote this message in a reply
[+] 3 users Like Chas's post
28-01-2016, 06:02 PM
RE: I have survived toughest year. Still in danger, but still alive.
You have showed me a proper way to live, brotherman.

#sigh
Find all posts by this user
Like Post Quote this message in a reply
[+] 4 users Like GirlyMan's post
28-01-2016, 06:03 PM
RE: I have survived toughest year. Still in danger, but still alive.
(28-01-2016 06:02 PM)GirlyMan Wrote:  You have showed me a proper way to live, brotherman.

Yeah, that. ↑↑↑

Skepticism is not a position; it is an approach to claims.
Science is not a subject, but a method.
[Image: flagstiny%206.gif]
Visit this user's website Find all posts by this user
Like Post Quote this message in a reply
[+] 2 users Like Chas's post
28-01-2016, 06:15 PM
RE: I have survived toughest year. Still in danger, but still alive.
(26-01-2016 10:32 AM)Banjo Wrote:  Hi guys.
So I had a great gig on Australia day. Played an outdoor show to a decent audience and many danced. I played percussion and apparently did very well.

The best thing was my great student Taso and his family attended. Taso said I was perfectly in time and played appropriately. No over playing. Here is a pic just before I went on.

[Image: IMG_2711_zpshkkzkq8g.jpg]

And after with he and his brother.

[Image: IMG_2717_zpsw0nfkgsr.jpg]

With the drummer.

[Image: IMG_2714_zpsep4fpwis.jpg]

Taso's mum is a nurse and spent the entire gig worrying I would catch my power pic line from the machine to my chest and rip it out. Smile

I was very careful. Hopefully shots of the actual gig will surface.

Whoever that guy, in the blue shirt, is, he might want to get some lady repellent cuz the groupies gonna be all over him! Big Grin

Lookin like a pimp, Dale! Hug

Find all posts by this user
Like Post Quote this message in a reply
[+] 2 users Like TheGulegon's post
28-01-2016, 07:56 PM
RE: I have survived toughest year. Still in danger, but still alive.
Thanks everyone. You'll make me cry.

My new phone has arrived. Time to fit it with the right sim card. Wiill respond properly upon return.

Love you all. Dale Smile

NOTE: Member, Tomasia uses this site to slander other individuals. He then later proclaims it a joke, but not in public.
I will call him a liar and a dog here and now.
Banjo.
Find all posts by this user
Like Post Quote this message in a reply
[+] 5 users Like Banjo's post
31-01-2016, 06:28 PM
RE: I have survived toughest year. Still in danger, but still alive.
I see a log on for you about an hour and a half ago Banjo... 3 days without posting though... how's it going?

Atheism: it's not just for communists any more!
America July 4 1776 - November 8 2016 RIP
Find all posts by this user
Like Post Quote this message in a reply
Post Reply
Forum Jump: